The following document includes the information on Slides 1- 10 in the PowerPoint presentation around Deafblind Communication. The information covers lots of different experiences of lots of different Deafblind people, and you can add your personal experiences too. The sections in italic text that begin with “You can:” offer some tips on how to include your personal experiences into the presentation.
Slide 1: Deafblind Communication
Deafblind presenter: insert your name here and add it to the PowerPoint slides included with this toolkit.
Slide 2: Acknowledgement of Country: Deafblind Australia acknowledges the traditional owners of country throughout Australia, and their continuing connection to land, sea and community. We pay our respects to them, to their cultures, and to their elders past, present and emerging.
You can: add a version of the above that makes reference to the local Aboriginal people’s of your area or the area where the workshop is taking place.
Slide 3: Workshop Agenda:
- What is Deafblindness?
- Who is Deafblind Australia and what is the Information, Resources and Workshops Reference Group (IRWRG)?
- Deafblindness in depth: Causes and impacts
- Deafblind Communication Basics
- Deafblind Communication Methods
Slide 4: Deafblindness defined:
Deafblindness is described as a unique and isolating sensory disability resulting from the combination of both hearing and vision loss or impairment. This has a significant effect on communication, socialization, mobility and daily living. Deafblindness is the result of a number of acquired and congenital conditions, impacts the above domains in a variety of ways, and is frequently regressive/degenerative in nature.
You can: Add a short part here about your own lived experience as a Deafblind person. Your personal history and some information about your condition.
Slide 5: The interpreting community at a glance
You can: Add any personal stories here about the difficulty of finding an interpreter given how small the community is.
Slide 6: Who is Deafblind Australia (DBA)?
DBA is the national representative body for the Deafblind community. They are a small, Deafblind lead organization that advocates, communicates and exchanges information to and from the Deafblind community nationwide to improve services and provide capacity building supports for Deafblind people, their families and the networks of support.
Slide 7: Information, Resources and Workshops Reference Group (IRWRG)
- Established in 2020
- 15 Deafblind Australians with varying backgrounds, communication methods and lived experiences.
- The group informs and guides the creation of resources and workshops that are relevant and representative of the community.
- 4 Members then completed Train the Trainer Program.
Slide 8: Causes of Deafblindness:
Congenital (from birth):
- Prematurity
- CHARGE Syndrome
- Norrie’s Disease
- Congenital Rubella Syndrome
- Usher Syndrome type 1
Acquired (after birth):
- Accident
- Usher Syndrome type 2 and 3
- Tumor
- Neurofibromatosis Type 2 (NF2)
- Ageing
Slide 9: Impacts of Deafblindness:
- Lack of access to information
- Loss of independence
- Ongoing repeating cycle of grief as deterioration worsens and needs change
- Increased dependence on others
- Increased negative mental health outcomes including depression, anxiety and feelings of helplessness
- Communication
- Relationships
You can: Add some personal stories here about your specific type of Deafblindness and how it has impacted different areas of your daily life.
Slide 10: Communication Basics- Approaching and Introduction:
- Approach from front when possible. From behind or the side may be startling.
- Gently place band on back of the Deafblind person’s hand, arm or shoulder and allow them time to move. They may raise their hands or move into a position where they can see you.
- Identify yourself.
- Be patient. Don’t rush the Deafblind person.
- Identify how the individual communicates and respond accordingly.
You can: Give some information here about how you like interpreters to approach you.