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Transcript:
Deafblind people have many barriers. Self-advocacy means you know your rights and feel comfortable explaining them to others. Doing this takes practice and time to learn and to feel confident. Sometimes, even if you can explain your needs really well you still might have barriers. These are times when it’s important to use advocates or advocacy organizations like Deafblind Australia to help.
Here are 5 steps to help you know how to advocate when you have a barrier.
Step 1
What do you want?
For example you might need a CommGuide, Interpreter or Environmental Improvement.
Step 2
Who can give it to you?
Organizations, local services, local or state government or education providers.
Step 3
What do they need to hear?
Focus on the relevant impact and risks and offer a solution.
Step 4
Who do they need to hear from?
YOU. Seek extra support with an advocate, a personal support system, or request Deafblind Consultant. Link below for Deafblind Consultant.
Step 5
How do they need to hear it?
There may be steps you have to follow to make the request. For example, applying online. Meeting in person. Or using a specific form.
Here are some examples of different barriers and how to use the 5 steps.
EXAMPLE 1
Your NDIS plan does not include something you needs as a Deafblind person. You asked for a hearing aid with rechargeable batteries and the NDIA said no.
Step 1: What do you want?
Funding to buy hearing aids with rechargeable batteries. This is because the ones with small batteries that you need to replace aren’t a good match for a Deafblind person.
Step 2: Who can give it to you?
The NDIA.
Step 3: What do they need to hear?
IMPACT: You do not feel confident changing hearing aid batteries and are not confident going out because if your hearing aid batteries go flat you will be stuck with no hearing aids and won’t be able to replace them.
RISK: If the batteries run flat and you can’t swap them without support you might get stuck out in the community unable to communicate.
SOLUTION: Funding rechargeable aids will remove these barriers and risks.
Step 4: Who do they need to hear from?
You. You might need an advocate, family member of friend to support you.
Step 5: How do they need to hear it?
In writing using the “Request for a Review” of a decision form submitted by email or by post.
EXAMPLE 2
The footpath outside your house is damaged and it is difficult for you to move around safely.
Step 1: What do you want?
The footpath to be fixed quickly.
Step 2: Who can give it to you?
Your local council.
Step 3: What do they need to hear?
IMPACT: You cannot leave the house alone and may miss important appointments.
RISK: Risk of injury from falling over
SOLUTION: Fix the footpath as soon as possible.
Step 4: Who do they need to hear from?
They need to hear it from you so you can explain your situation and why it’s important. You might need an advocate to help you or a family member or friend to support you.
Step 5: How do they need to hear it?
The council might have a form on their website or a phone number you can use to report things that need fixing in your area. You could also use the app called Snap Send Solve to let the council know there is a problem.